DOE Worker Health-Related Studies and Programs

Chronic Beryllium Disease (CBD)

DOE recent initiatives for developing chronic beryllium disease awareness card and Web site
In December 2011, HSS launched a new awareness Web site about chronic beryllium disease (CBD); it can be accessed at http://www.hss.doe.gov/cbd_awareness.html. The Web site provides a broad-based set of information and resources about beryllium, CBD, CBD symptoms, and consequential conditions of CBD and its treatment. Along with the Web site, HSS has developed a wallet-sized card for workers and their treating physicians with summary information about CBD. We will be providing each of you with a CBD Awareness Card at the next CDOEIRB meeting, but if you would like copies of the card now, it can be printed from the first page of the CBD Awareness Web site.

The CBD awareness card and Web site are part of HSS's corporate outreach initiative to provide information to the worker community, as well as the medical community, and to enhance the likelihood of timely diagnosis and treatment of potential CBD cases. We hope the information provided in the CBD Web site will help patients understand the interrelationship between CBD and other medical conditions they may be experiencing. We also believe that this information may help clinicians who may have little experience with CBD to understand the wider effects of the disease.

The next phase of the CBD awareness project will be outreach; trying to make sure as many people as possible know about the Web site and card and what they offer. If you have any questions, please do not hesitate to contact us.

DOE-Wide Central Institutional Review Board (IRB) Review
Information on the history, scope, and procedures of the Central Department of Energy IRB (CDOEIRB).

Guidance for Informed Choice on Beryllium Testing (pdf)
Introduction, question/answer matrix for current and former workers, and listing of services available through the Former Worker Surveillance Program, including contact information.

Bridging DOE and Department of Labor (DOL) Medical Monitoring Programs for Chronic Beryllium Disease
An explanation of how DOE and DOL together support beryllium sensitization screening.

Prevention Program
A variety of resources related to DOE's CBD Prevention Program.

Sites with Prevention Programs
A list on the DOE Web site of DOE sites with CBD prevention programs.

Laws and Orders
Links for accessing laws and orders.

Beryllium Lymphocyte Proliferation Test (Be LPT)
Resources on the Be LPT.

Beryllium Testing: National Supplemental Screening Program (NSSP) fact sheet and informed consent statement (pdf)
Information on the beryllium testing component of the NSSP including informed consent statement.

Beryllium Testing for Former Beryllium Vendors fact sheet (pdf)
Information on the DOE Former Beryllium Vendor Medical Surveillance Program, which offers testing to employees of defunct DOE beryllium vendors.

Beryllium Testing for Former Beryllium Vendors: Informed Consent Form (pdf)
Informed consent statement to be completed by those participating in the Former Beryllium Vendor Medical Surveillance Program.

Support Groups
List of active beryllium support groups around the country.

National Jewish Medical and Research Center
Information offered by NJMRC on chronic beryllium disease.

Agency for Toxic Substances and Disease Registry ToxFAQs for Beryllium
Answers to frequently asked questions about beryllium.

Beryllium-Related Industry Research
Links to industry research on beryllium.

Content reviewed: August 29, 2012